Sick and struggling, what is wrong with me?

In 2018 I was in the hospital more times than I can count on my hands. I saw more doctors than I’d like to admit too and I took more medication than I probably ever needed. I say that last part meaning that I believe I was absolutely prescribed the wrong medications at least a half-dozen times.

I’ve been fighting a sinus infection since November of 2017. Since that time I’ve also had an eye infection several times and recurrent ear infections.

I’ve tried everything. Crazy diets, obscene amounts of vitamins and minerals, exercise and subsequent weight loss, different therapies, essential oils, basically anything I could think to try, I’ve done.

And yet the infection persists.

During this time in which I have been dealing with pressure in my head (from the infection) and struggling to function, six doctors have prematurely diagnosed me with diabetes, one with Lupus and one just wouldn’t even look at me and told me I have IBS. All of them prescribed me antibiotics.

I’m not diabetic. I’ve taken that test several times now, and yet they still won’t let that concept go.

I do not have Lupus. I’ve also been tested for that.

I’ve also had my thyroid tested, my liver functionality tested, had an allergy test done, had my blood drawn – at least 20 times and been given nasal spray and told that it’ll go away in a few days. I also had a sleep apnea test done last year as well.

Every time I get tests done the doctors tell me that I’m fine. That on paper everything looks great so antibiotics should have me good and better in 3-5 days.

My eyes are always red. I look like a stoner, and have been asked on several occasions if I am a stoner because of the fact that my eyes are so frequently red and splotchy.

‘No Doc, I do not smoke pot,’ I’d say. ‘Nor do I do drugs, and the amount of times I drink alcohol in a year can be counted on one hand. I do not believe this is drug or alcohol related.’

I saw an Ear/Nose/Throat specialist on February 7. It took 9 months to get an appointment with him because, apparently, ENT doctors are in that high of demand. The ENT told me that my nasal cavities were swollen to an alarming rate. He said that normally when he inspects patients he’s able to use a laparoscopic camera to view their ear, nose and throat cavities and see what’s wrong. He said that mine were so swollen it was alarming to him. Thank you, Mr. ENT, THIS IS WHAT I HAVE BEEN SAYING FOR OVER A YEAR.

Excuse my yelling. It was just nice to have someone finally admit that the problem was the problem.

I was prescribed steroids to stop the swelling in my face and told to come back in one month so that he could get a better viewing of the extent of the damage. He also sent me for a CT scan so that he can have a view of my head.

I find out the results from that on March 4.

Right now, though, right now I am struggling. This steroid that is stopping the swelling my face is also giving me mega headaches. I’ve also got small things doing on that I’m noticing that I believe are appearing because of the infection.

My nails are cracking and breaking like crazy, down to the skin, right in the middle of the nail. It’s actually quite painful. There’s a weird rash on my right foot that seems to come and go as it pleases – I have yet to figure out what is causing it and why it’s only appearing on my foot, and only one foot at that. My hair, in spite of the fact that I take really good care of it, use minimal products and don’t use heat tools, has horrid split ends. I can cut them off and they reappear in days. My eyes are still red… so I still look like a stoner. And I’m tired. I’m tired a lot of the time. Being awake for 12 hours in a day seems like an arduous task.

I’m frustrated that I can’t figure out what’s wrong with me and therefore cannot figure out how to fix it. I’m frustrated with the amount of doctors who just wrote me off and said “You’re just diabetic”, or just prescribed me antibiotics and told me to be on my way.

I’m angry that it’s been over a year. I’m angry that I’m still suffering with these issues. I’m angry that it’s so hard to sleep. I’m angry that because I don’t know what is wrong, I cannot fix it.

On days when my anxiety gets bad, I have a hard time dealing with this. What if it’s an issue with my brain? How should I know? My brain spirals off into crazy places and there’s no way of coming back.

In spite of eating healthily, exercising, taking all of the right vitamins and minerals, and so on and so forth, I can’t get over this. Why can’t my body fight this?

Desperately waiting for March 4, hoping for some sort of an answer on that day, and if not then, hoping for a sign from the universe of how to help myself.

Okay, I’m done whining now.

Whew.

20 thoughts on “Sick and struggling, what is wrong with me?

  1. This can be SO frustrating!!!! I’ve had mystery symptoms – some that come and go – for five years and nobody can tell me what’s going on. You’re definitely not alone – it’s a flipping epidemic anymore. They keep finding more and more autoimmune diseases… That’s kinda what this sounds like. Have you had inflammation marker blood work?

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    1. I have not had inflammation marker blood work! At least I don’t think that I have. Thank you for the suggestion. I am going to look into that and see if it’s something I can bring up to my doctor. It can’t hurt, right? And at this point, I’m probably thinking it is some weird/rare autoimmune disease of sorts. That’s where my mind wanders, anyways.

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  2. Hey, don’t be hard on yourself or on those poor docs. Human body is an amazing machine and it works so uniquely for every individual soul. Just keep positive mind and give yourself the break that your body is telling you. Until you are 100% alright, pls. keep a positive outlook and believe that you will be alright with right diagnosis and medication. Seems like your diagnonis has taken too long. Praying for your health. A stranger 🙂 Amir

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  3. Hope you soon get answers and yes, sometimes it feels like just been quickly written off than getting down to finding out what’s wrong. So yes, I can certainly understand how you felt acknowledged for once by the ENT.

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  4. I hope you get answers (and effective treatment) soon and I’m sorry you’re going through this. I went through something similar a few years ago when I gained, like, 30-40 lbs. in a year without nothing really changing about my lifestyle or eating habits. Went through blood work, tests, etc, thinking I was diabetic, had PCOS, etc, etc. but….nope. Just fat. lol At least I don’t have high blood pressure or cholesterol or anything.
    Anyway, I’m sure this isn’t the answer to all of your problems, but I’m wondering if some of the stuff is caused by stress?
    The year I got married, I also started a new job (which was HORRIBLE) and bought a house and I was so stressed out I thought I was dying. Literally. I had almost constant headaches, I couldn’t concentrate on something as simple as a grocery list, I was constantly forgetting things, my hair was falling out in clumps, I was sick to my stomach all the time, achy … the list goes on and on. I’m sure you’re tired of hearing that and of course all this madness only adds to your stress, but I hope things start looking up for you soon.

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    1. You comment reminded me that my doctor also looked into PCOS last year and determined it wasn’t that, either! While I’m sure you’re very much right that some of it could be brought on by stress, when it began my life was pretty, pretty, pretty swell.

      That’s crazy what happened to you when you got married. That sounds very similar to me! Thank you for letting me know I am not alone and sharing your story. I really appreciate it.

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  5. It could be the lectins in the foods you’re eating. I highly recommend reading Dr. Gundry’s book The Plant Paradox. Some foods that we think are healthy aren’t because they contain lectins, which is the plants’ way of protecting their “babies.” I had a lot of health issues before I switched to the Plant Paradox program, and now the issues are gone. It’s not your fault. You just don’t have all of the information. Someone told me about the book, and I’m passing it on to you. I wish you health and the best outcome.

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    1. I will definitely be looking into the book. This far into it, I will look into anything! I’ve never heard of Lectins, though upon a quick google it would appear that I could be eating a lot of them. Thank you for your suggestion!

      Liked by 1 person

  6. Hope you get some answers on March 4th. I understand your struggle, Ive been going through this for the last year. Doctors can be so dismissive and we have to keep fighting to find the right one to give us answers. Stay strong. ❤️

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  7. I hope you don’t mind me making two suggestions (both of which you Amy already be doing): eat a diet high in foods that are anti-inflammatory & anti-oxidant (not supplements) & try mindfulness (as I’m guessing there is a stress component to this) x

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  8. I’m not going to give you advise, If I had any worth giving I would not be writing the novel below!

    Aside from the obvious age difference I read some of your blogs and OMG it’s like you’re writing my life story.

    My mom was just recently diagnosed with lung cancer and we are just getting her treatments started.

    In Jan of 2010 I had never ever ever called out sick a day in my life. I was at work and my head started hurting so bad I couldn’t hardly stand. I pushed through and went home. The next day I ended up in the bathroom for a loooong time and against my better judgement I called out of work.

    The one day turned into a week, a month and two months. I saw 4 different doctors and one emergency room visit. All said I had a viral sinus infection. (later I realized it was from sinus spray the doctor had prescribed which one of the side effects was viral infection in sinus)

    My headache was so bad I couldn’t sleep more than a few minutes so I was basically in a state of suspended animation, never quite asleep never quite awake. Water from the shower felt like rocks hitting my head and forget standing for more than a few minutes. (I got really good at taking 3 minute showers which wiped me out for the rest of the day)

    Nothing worked, steroids messed me up so bad, etc. The headache lasted 93 days. On day 94 I woke up and called out to my boys, who at the time were used to my little emergencies. When they came in I apologized and announced my head didn’t hurt, I cried. It lasted a 4 glorious hours.

    I finally started forcing myself to work for just a few minutes a day and built myself back up. The headache returned but each day got a little shorter.

    In December of 2010 I was railroaded by co-workers and lost my job. Unemployment luckily paid most of my bills. My father died in Jan 2011.

    Then went to work full time for a local paper, they were selling so for 3 years I lived with constant anxiety that I would be out of work again. Eventually got laid off just before the paper folded, then back on unemployment. Then back to another local paper who couldn’t afford to pay a full time writer so now I’m on my own.

    I know anxiety is a big part of it, but it is the symptom, not the cause. I’ve been on Prilosec for heartburn it messed me up especially causing severe crazy weird anxiety, got off that, Zanax also gave me side effects and withdrawal. People say I didn’t take enough of it. I got off that.

    So here is what I KNOW. I have severe sinus issues, headaches that make me dizzy and weak, I also get migraines that cause me to go numb on one side and it impairs vision for about 20 minutes at the onset. I have IBS which comes and goes with stress and I have severe dental issues which I can’t afford to get fixed. TMJ has been a problem most of my life and I have literally taught myself to clench my jaws without touching my teeth together. Years of teeth grinding have caused many of my dental issues.

    This is my new norm. I have embarrassed it. I didn’t go quietly but I had to come to terms with my symptoms and lack of a diagnosis that leads to a treatment or cure.

    I feel for you and hope you find peace with your symptoms. Good luck with your mom and keep us posted on test results.

    Sorry for the long post, just wanted to share and let you know you’re not the only one.

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    1. You have been through quite the ordeal for the past several years. Holy moly. Thank you for sharing your story with me. A lot of what you said resonates with me very much so.

      I’m sorry for your symptoms and struggles, I can relate. I am hoping that we both find peace of mind, one day. One day at a time is a good way to look at it – like you’ve said above.

      One day at a time ❤

      Liked by 1 person

  9. I’m so sorry you’re dealing with this. I have a close friend that’s dealing with a similar situation. I look forward to the time mentioned in Isaiah 33:24 where “no resident will say ‘I am sick’. I pray God provides you with the strength and comfort (2 Corinthians 1:3,4) needed to continue to get through this.

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