I had a follow up appointment with the ENT (Ear Nose and Throat) specialist today. After taking 9 months to get to him (referrals take forever in this part of the country) it’s so nice being able to book follow up appointments so quickly.
Where we last left off – I’ve had a sinus infection and several other mysterious ailments since November of 2017. The ENT Specialist made a referral for me to get a CT Scan so that he could have a full view of the inside of my head. The scan was done two weeks ago, so today, I went for the results of the CT Scan, hoping and praying that something was wrong on my scan so at least we would have something that was fixable.
My CT scan is perfectly normal. According to him, looking at my scan looks like a normal scan of a perfectly normal human being.
This obviously upset me quite a bit because I’ve been struggling for quite a while. And, he can see that I am struggling. He let me know that he sees I’m struggling and he wants to make me better. When he tried to stick his laparoscopic camera up my nose to see what was going on, he could not because it was too swollen.
Thankfully, the ENT specialist is not quitting on me. He proclaimed that he knows something is wrong with me and he will get to the bottom of it if I have to keep coming back to see him every month. Which, thank you! Thank you so much. I have finally found a doctor that agrees something is not right and needs to be fixed.
He’s scheduled me for some AutoImmune – Blood Tests for next week. (Thank you to DomesticatedRambler for suggesting that on a previous post I made to this blog) The ENT suggested that if this is something autoimmune related, the blood markers test he’s sending me for could explain a lot.
He’s also scheduled me to have a full scale allergist appointment in a couple of weeks. The test is not just a blood test (like I’ve had in the past), but instead, a full fledged allergen test where they prick you with the allergen and tape the area of your skin to see where your body/blood reacts and where it doesn’t. Apparently it tests for up to 250 allergens, so it involves getting poked by needles 250 times. Sounds like fun! Not! But, if it helps figure out what’s wrong with me, I will be grateful.
The ENT also referred me to a new medication for sinus infections called ‘Rhino Rinse’. It’s not something I’ve ever had before. He says you need to get referrals for it and then told me that it would be covered by my insurance. When I mentioned to him that I was presently unemployed, and thus without insurance, he gave me one. He just gave it to me! He said the units could be quite pricey and he does’t want me to have to pay for it if he’s not even positive if it will help me or not. How nice is he? So amazing!
I left the appointment today with him saying “I know you’re not feeling good, I know you’re struggling. I can see it. I am going to do whatever I can and whatever is in my power to help you feel better. We will get to the bottom of this, so please don’t give up.”
It’s like he knew exactly what I needed to hear but didn’t want to ask him to say. Nevertheless it made me tear up when he said it. I’m just so thankful to have found a doctor who is helpful and doesn’t pass me off as a hypochondriac.
I have a follow up with the ENT on April 11. At that time he will provide me the results to my AutoImmune blood work and to my allergy test. Here’s to praying that at least one of those shows something. Anything! If I know what’s wrong I can work to fixing it. I just need to know what’s wrong.
Whew, this was a lot to say. Heading to bed now.
Rest easy, world. ❤